Having been a participant during the inception with Syracuse Spinal Association (SSA), where we met in person, and now with Zoom video conferencing, I can honesty say that the SSA is evolving in a most positive direction. Meeting in person was outstanding, as direct, interpersonal contact is vital. However, transportation difficulties, distance to travel, the weather, among other variables, wasn’t conducive to consistent participation and a deterrent to expansion. I applaud video conferencing. There is opportunity for greater participation and expansion. I have seen the email list from notifications that SSA has sent out and it includes dozens of email contacts. Participation is still voluntary but is available with a click on the link. Outreach has never been simpler and easier.
Since it’s beginning SSA has provided quality, and essential, information. Guest speakers who present the newest technologies, health care professionals speaking on a variety of topics, travel information for places that are amenable to those with disabilities, and a variety of other topics are monthly staples. Commiseration time is afforded as well, vital to all who participate. This interaction amongst participants sharing trials, tribulations, triumphs, advice, critiques, and a plethora of experiences may be the most valuable objective of SSA. After 40 years of researching as much as I can about spinal cord injury (SCI) I have learned valuable information and insights from not only presenters but also my fellow spinal cord friends on here. New technology, treatments, medicines, studies, adaptable devices, procedures and intellect in general are continuously happening. I applaud the SSA Board of Directors (BOD) and everyone who is, and has been involved, in not only creating and maintaining SSA, but also scheduling meaningful presenters to the group.
Spinal cord injuries are devastating. No two injuries are alike, each is unique. There isn’t a playbook to guide us the rest of our lives. Going from a “normal” functioning, physical human being to having physical limitations is soul-crushing. How do you avoid stress every second of the day? How do you stay positive? How do you overcome obstacles – are there are several every day? Most of all, in my opinion, how do you regain some semblance of independence? Weakness is considered a flaw in all cultures. Talking about our troubles is also considered a weakness, thus we are loathe to express ourselves. What I’ve found is that SSA provides a vehicle to bridge this weakness gap. It may take time for some to feel comfortable opening up but once a subject triggers familiarity, commiseration ensues. THAT is essential. Knowledge is shared and we are all the better for it. I’ve only been a part of 4 video conferences and I feel a connection to several people. I’m positive that the SSABOD are continually looking to evolve and appreciate all suggestions givens to them in order to better serve our population.
– Quality of Life Grant Recipient, Gregg Bayne (C6-7 incomplete spinal cord injury)